PINK CABIN STORY: ALEXIS, CAROLYN & JOCELYN

-Lathronia Jefferson, Khaleb’s Mom

ALEXIS

ALEXIS We found out about CRA through MUSC. She started attending the day camps at first and now attends the week long overnight camps at Camp Cole. Alexis was always a very shy kid. Even at her first camp se She now has a job working in a pet store and is doing great with it.

PINK CABIN STORY: ALEXIS, CAROLYN & JOCELYN

Before meeting each other at camp, the Pink Cabin Ladies all faced difficult struggles with their unique diagnoses. But coming together at CRA led to some incredible changes. Swipe to read snapshots of their journeys. As Lexi’s mom Kim says, “When she found out there was an overnight camp she was so excited to go. This was the first time she had ever stayed away from home. I felt confident letting her go because I knew it was the safest place she could be besides home.” Thanks to camp, these amazing girls have found lifelong friendships and enjoy outings like ice skating, celebrating birthdays, and a never ending text chain year round. Two cabin-mates have even joined a statewide archery team! We can’t say it better than Lexi: “Camp Rise Above is a place where I can be me and know I can have fun even with epilepsy. The friendships I have made are my best friends that I have ever had in my entire life. They mean so much to me.

CAMP MATTERS

Because friendships matter. Because belonging matters. And because our campers matter.

CAROLYNN

When Carolynn was born we never knew she had a brain malformation. It wasn’t until a few months after she turned 3 that our lives changed. I was giving Carolynn a bath and suddenly she was staring at me but she wasn’t reacting or playing anymore. She had also spiked a high fever and started to throw her head back. We tried to get her attention but nothing was working. So we immediately called 911, and the paramedics informed us that she was indeed having a seizure. That was when our journey with Neurologists and Epilepsy started. Carolynn was diagnosed with Febrile seizures, and then after a couple EEG’s and a MRI she was diagnosed with Partial Cortical Dysplasia. Since then it has been a journey of medication changes, a few more EEG’s, and lots of doctor visits. Carolynn is a trooper and rarely lets it slow her down. Drawing and Anime are what keep her biggest interests, and they have always been a way for her to express herself. Carolynn is 18 years old now, and ready to tackle the world.

JOCELYN

Finding out about Jocelyn's sickle cell diagnosis was such a difficult thing to hear as a parent. I didn't know at the time what it meant and how her life would change and mine. We got our diagnosis when Jocelyn was a few weeks old. She was put on oral medication not to long after. In her early years we had in and out hospital stays and just adjusting life to knowing her body and when she was experiencing a sickle cell crisis. Jocelyn has so many interests, she loves crafty things such as painting, sewing and recently doing nails. She has an amazing gift for this! I found out about Camp Rise Above through her doctor's at MUSC. We started attending the summer 2-day camps which she absolutely enjoyed. During that experience she loved her counselors and met girls just like her. She has attended the overnight camp for the second summer in a row and she just looks forward to it every year now. As a nervous parent I worried the first time she went because it seemed like a week was a long time. I thought about what if she gets home sick, what if she has a crisis, what if she needs something. I couldn't have been more wrong. She was in the best hands ever. The memories and friendships she has made over the years warms my heart greatly because it shows how much it means to her having others around her who can relate and understand some of the challenges she faces. She was exposed so many things that I never imagined like horseback riding, archery. The biggest change I have seen in my daughter as a result of camp has been how compassionate and caring she is with other's diagnosis and being aware of how she can help and support them. Whether it be becoming their friend or standing up for someone if they need help. I owe so much of this to CRA. "Camp Matters to me because I have built lifelong connections and hope that in the future all kids and teens with disabilities are able to do things that I have been able to experience because of camp."~ Jocelyn

ALEXIS

We found out about CRA through MUSC. She started attending the day camps at first and now attends the week long overnight camps at Camp Cole. Alexis was always a very shy kid. Even at her  first camp se She now has a job working in a pet store and is doing great with it.