Everly's Story

From the first summer Everly joined us at CRA, we couldn’t imagine camp without her. Her first summer she bravely tried all the new things, and every summer after, she arrived with more confidence than before. Her stubborn, hilarious, and loyal personality together with her incredible dance talent, allowed us to watch Everly grow into a young woman, even while her diagnoses became more complicated.

Everly

Video with Dr. Ramin Eskandari, Everly & Her Mother, Penny

In 2021, CRA held its first overnight camps which allowed Everly (and many others) to spend the night away from family for the first time. Collaboration with medical staff, counselors, and camp staff allowed Everly to have a fun week at camp, staying safe in every situation. And facing a significant surgery in 2022, Everly’s medical team was adamant that she has fun at camp before facing the possible risks of her surgery.

Why Camp Matters to Everly

Video with Dr. Ramin Eskandari & Her Mother, Penny and Everly

Update from surgery, hope for the future….

“It all seemed to big and scary and complicated. But Camp Rise Above changed all of that for Everly – and for our whole family. She was welcomed with open arms, no diagnosis was too big or too scary. They just showed love and acceptance and friendship. We are so thankful for their mission and the value that they place on all children. Everly is a different child because of CRA. Yes, the scary diagnosis is still there, but walking this journey with our friends at CRA makes it a little lighter.”
-Penny, Everly’s Mother